Support

"Believe me, there was nothing funny about being told that I had a tumor. Nothing that the doctors said sank in and was all too clinical even for me, lol. All I needed was support, which I had from my family and friends. Other than that I felt confused to what help was out there for me and for those around me."

"My operation went well, feeling quite alert even though I just had a brain tumor removed. 48 hours after, I took a turn for the worst, being sick, confused, agitated, upset, lost. I was rushed into theatre again... Waking up in intensive care, wires everywhere, wanting to move... But couldn't!"

"I live aware that if I have a bang on the top of my head it could be fatal, but on a positive note I am me and wouldn't change that for the world. I am a little better, stronger and thoughtful person thanks to my brain."

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Support & Information

This information is all UK based. Your local hospital will also be a good point of reference, however I feel the links that have been provided by myself and others should also be very useful.

Cancer Research UK

Cancer Research UK - PO BOX 123 - London - WC2A 3PX

Brain Tumour Action

Brain Tumour Action - 25 Anne Street - Edinborough

(administrator@braintumouraction.co.uk)

Brain & Spine Foundation

Brain & Spine Foundation - 7 Winchester House - Crammer Road - London - SW9 6FJ

(helpline@brainandspine.org.uk)

(0808 808 1000 Mon-Thu 9am - 2pm & Fri 9am - 1pm)

Macmillan Cancer Support

Macmillan Cancer Support - Head Office - 89 Albet Embankment - London - SE1 7UQ

(0808 808 2020 Mon-Fri 8am to 9pm)

The Pituitary Foundation

Pituitary Foundation - PO BOX 1944 - Bristol - BS99 2UB

(0845 450 0375 Mon-Fri 9am - 5pm)

(helpline@pituitary.org.uk)

Headway

(0808 800 2244 Mon-Fri 9am - 5pm)

(helpline@headway.org.uk)

Patient

Stroke Association Groups

Stroke Information Service - The Stroke Association - 240 City Road - London - EC1V 2PR

(0845 3033 100 Mon-Fri 9am - 5pm)

(info@stroke.org.uk)

QEF

Queen Elizabeth's Foundation - Leatherhead Court - Woodlands Road - Leatherhead - Surrey - KT22 0BN

(info@qef.org.uk)

NHS

Help and Support


By whatever means you see fit, there are options to talk if you wish to branch out. I have tried to accommodate for those who wish to share or discuss their experiences or concerns.

StawberryThe Forum. For people to offer information on organisations & counseling for brain abnormality sufferers and their families. Also a way to share your story.

CoffeeOne to one. A way to talk with me directly so that we may support one another. Whether it is friend, family or sufferer, I am here.

CoffeeFacebook. A great way to keep in touch with those who can relate. Feel free to join my group.

CoffeeSupport. This is a list of compiled sites. Some I found useful and others that you have promoted. Hopefully I will act as a 'go to' for your help & support